Patient Empowerment Platform

The objective of the Patient Empowerment Platform is to give the patient and their informal caregivers the tools and education to enable them to actively participate in the management of the patient’s multimorbid chronic conditions. As patients are not often involved in care planning decisions, especially when addressing multiple conditions for which care plans are made with or by different professionals. 

In C3-Cloud, the principles and practices of the Chronic Disease Self-Management Program are used, as well as existing programmes in use at the local pilot sites. Some references below this page.

You will find an overview of the main functionalities of the Patient Empowerment Platform below or you can view the videos on the right.

General overview

Care planning for patients

This figure shows the home page view of the Patient Empowerment Platform when Inda Kitchen, the informal carer of George Kitchen, logs in to access George’s care plan. The numbered sections (1-8) highlight the functionalities, the most important of whiche will be described in the following figures.

The personal care plan of the patient can be viewed and any goals, activities or informational materials that have been assigned by the healthcare team acted on. 

For example, for the goal “Keep blood pressure under control”, the patient is requested to perform the activity “self-measurement of blood pressure” once a day for 2 months. The blood pressure data collection can be done manually or via sensor devices.

The active tasks that the patient needs to perform are displayed on the home page for easy access.

The care team may request the completion of some patient questionnaires, such as medication side effects. Upon completion, the care team is notified of a new completed questionnaire by the patient.

Tracking of measurements and observations can be done, e.g. blood pressure, weight, and previously recorded information can also be viewed. The figure shows readings for the patient’s blood pressure on a chart.

Communication between the care team and the patient is done via messages. Video communication tools are not currently being piloted in the project, but the Medixine Suite product on which the platform is built has this capability.

Appointments that the care team has added to the care plan can be viewed from the home page.

The Info section contains information and educational materials that have been assigned to the patient by the care team, e.g. leaflets about conditions and treatments.

Towards a patient-centered approach

Chronic disease requires a fundamental shift from disease-centred to patient- and family-centred approach, combining self-management in the community with well-integrated professional support through the life-course [1]. The Innovative Care for Chronic Conditions Framework (ICCCF), by WHO, provides a comprehensive framework for updating health care to meet the needs of chronic conditions by summarizing the basic elements for improvement in health systems at the policy level, health care organisation and community level, and the patient interaction level [2]

References

[1] European Patients’ Forum. EPF Background Brief: Patient Empowerment. Available from http://www.eu-patient.eu/globalassets/campaign-patient-empowerment/briefing_paperpatient-empowerment_final_external.pdf

[2] World Health Organisation (2002) Innovative Care for Chronic Conditions: Building Blocks for Action.